Welcome to the Dystonia & Essential Tremor Support Group
The Silicon Valley Group is a support group for those with the Neurological movement disorders of Essential Tremor and Dystonia. It is a friendly group where everyone is welcome, and you can be sure that your privacy and anything you share within the group will be kept in confidence.
I have always thought of the truth in the quote by William James that states: “Act as if what you do makes a difference. It does.” One person, one small act can make a huge difference. A reality of life is that no one ever achieved anything in isolation, at some point on the journey there was a helping hand that opened a door or let their voice be heard. So it was that the Silicon Valley group was born on the 5th of May 2012.
With no support group in the area, nowhere to seek out information about Essential Tremor or Dystonia except perhaps the Internet, it is very easy to become isolated and wonder if you are the only one who has to cope with the condition. Whilst family and friends can be supportive, it is always beneficial to those with movement disorders to be able to meet with, share, learn and be supportive with others who are experiencing the same or similar things as them. As stated above, nothing is ever achieved in isolation and I realise this is one to many quotes but “It is better to light a candle than to sit in the darkness.” That is what the Silicon Valley group aims to do, shine a light on these conditions by creating a greater awareness and being supportive of its members and those everywhere with Essential Tremor and Dystonia.
Those with Essential Tremor and Dystonia did not ask for these illnesses or do anything to bring them about. Very often those given the diagnosis by their physician are sent off to cope and learn about their diagnosis in isolation. But these movement disorders certainly take a toll on their lives many live in isolation tired of being stared at and not able to do what others take for granted.
If you would like to help create a greater awareness and / or raise funds for research into either of these conditions please contact us or the following foundations.
To join this website and see further information and group details please Register by clicking here or go to the link at the very top of this website (in the blue bar). If you are already a website member, please login – click here or the login link at the blue bar at the top of this page.